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EVA-3841 Add consent statement#221

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nitin-ebi merged 3 commits into
EBIvariation:masterfrom
nitin-ebi:add-consent-statement
Jul 7, 2025
Merged

EVA-3841 Add consent statement#221
nitin-ebi merged 3 commits into
EBIvariation:masterfrom
nitin-ebi:add-consent-statement

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@nitin-ebi nitin-ebi requested review from apriltuesday and tcezard July 1, 2025 14:58
@nitin-ebi nitin-ebi self-assigned this Jul 1, 2025
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<li>Prepare valid VCF file(s), which can be validated prior to submission using the <a href="https://github.com/EBIvariation/eva-sub-cli" target="_blank">eva-sub-cli tool</a>.</li>
<li>Complete a <a href="https://raw.githubusercontent.com/EBIvariation/eva-sub-cli/main/eva_sub_cli/etc/EVA_Submission_template.xlsx" target="_blank">metadata template</a> describing the samples and analyses in your study. This can be validated alongside your VCF files with <a href="https://github.com/EBIvariation/eva-sub-cli" target="_blank">eva-sub-cli</a>. Please provide as much metadata as possible since this information is useful for downstream analysis and leads to increased dataset reuse. For reference, here is an <a href="https://raw.githubusercontent.com/EBIvariation/eva-sub-cli/main/eva_sub_cli/etc/EVA_Submission_Example.xlsx" target="_blank">example</a> of a completed metadata template.</li>
<li>Please also note that the template requires the submitter to fill in some personal data, which will be used as described in our <a href="https://www.ebi.ac.uk/data-protection/privacy-notice/embl-ebi-public-website/" target="_blank">privacy notice</a>.</li>
<li>If your submission contains human genotype data, then please provide a signed copy of our <a href="https://docs.google.com/document/d/1UaRmimAe919IZYIH55mDXMe-4sHsRVqaP4moqx2IYE4" target="_blank">Consent Statement</a> via email to <a href="mailto:eva-helpdesk@ebi.ac.uk">eva-helpdesk@ebi.ac.uk</a>.</li>
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We should link to the FAQ from this statement

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done

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<li class="accordion-item is-active" data-accordion-item>
<a class="accordion-title"><h5>Do I need to provide a consent statement for my submission?</h5></a>
<div class="accordion-content" data-tab-content>
<p>If your submission contains human genotype data, then you will need to provide a signed copy of our <a href="https://docs.google.com/document/d/1UaRmimAe919IZYIH55mDXMe-4sHsRVqaP4moqx2IYE4" target="_blank">Consent Statement</a> via email to <a href="mailto:eva-helpdesk@ebi.ac.uk">eva-helpdesk@ebi.ac.uk</a>. Your submission will only be processed after receiving the consent statement.</p>
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Suggested change
<p>If your submission contains human genotype data, then you will need to provide a signed copy of our <a href="https://docs.google.com/document/d/1UaRmimAe919IZYIH55mDXMe-4sHsRVqaP4moqx2IYE4" target="_blank">Consent Statement</a> via email to <a href="mailto:eva-helpdesk@ebi.ac.uk">eva-helpdesk@ebi.ac.uk</a>. Your submission will only be processed after receiving the consent statement.</p>
<p>The EVA is an open access resource and it is the submitter's responsibility to ensure their data is compliant with this policy. If human genotype data is to be submitted then we request a consent statement to be completed prior to submission: <a href="https://docs.google.com/document/d/1UaRmimAe919IZYIH55mDXMe-4sHsRVqaP4moqx2IYE4" target="_blank">Consent Statement</a> via email to <a href="mailto:eva-helpdesk@ebi.ac.uk">eva-helpdesk@ebi.ac.uk</a>. Your submission will only be processed after receiving the consent statement. If your data contains allele frequency and no genotypes then no consent statement is needed.
Please consider that if your data requires controlled access, an alternative EMBL-EBI service, the European Genome-phenome Archive (EGA; www.ebi.ac.uk/ega), will be more suitable for your submission.</p>

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updated

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@nitin-ebi nitin-ebi merged commit 3946711 into EBIvariation:master Jul 7, 2025
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3 participants